Please press on Speaker Name and Abstract for more information.
Thursday, October 20, 2011
7:30am | Registration opens
8:00am-8:45am | Coffee Station Opens
8:45am-9:30am | Welcome & Opening Remarks
Nehama Baum, Ph.D., C.Psych.
MukiBaum Treatment Centres, Toronto, Canada
Dr. Baum is the founder and Executive Director of MukiBaum Treatment Centres. Having worked at the Israeli Ministry of Education, Dr. Baum moved to Canada where she received a Ph.D. in Clinical Psychology at the University of Toronto.
She founded MukiBaum Treatment Centres, which assists children, adolescents and adults with dual diagnosis (developmental and emotional/psychiatric disorders). Dr. Baum is
dedicated to improving the quality of life of people with disabilities through various means including sensory therapy, art education, expressive arts therapies and sandplay therapy which she pioneered in Canada.
The Potentialities of Sensory Capital:
From Concept to an Operational Intervention Model
Abstract
Issues of actualization of hidden potential and ongoing evolvement of learning capability have always been at the centre of my treatment approach. From the beginning of my professional work I strived to help individuals with disabilities to achieve increased ability, expand their cognitive functioning and assist them in acquiring better social knowledge and social skills. A core aspect of the Multi Focal Approach, which I started to develop in 1972, has been the realization that in order to affect change in the life, functional ability and conduct of individuals with complex disabilities we need to first attend to their emotional and psychological needs and expressions. The Multi Focal Approach which is implemented and practiced at MukiBaum Treatment Centres, is based on the primary realization and belief that by focusing on, and relating to the emotional and psychological aspects of the person rather than on solely attempting to change his or her behaviour, will result in improvement in the individual's self-image. Moreover, such emphasis will affect a deepening of the person's consciousness which will further enhance a more stable emotional and psychological ability, and improved overall functioning. While working on my PhD dissertation (1979) that put to clinical practice the Multi Focal Approach, and through the analysis of my data, I became aware of the impact sensory challenges have on the behaviour and learning ability of children and adult with various complex disabilities. I realized that focusing solely on the emotional and psychological aspects was lacking a third core element. As a result I added to, and included in my Multi Focal Approach the sensory core-focus as a third fundamental area of practice and therapy. It became clear to me that behavioural communication, in addition to being expressions of complications in the emotional and/or psychological personality aspects of a child or adult, are also expressions of challenges in the areas of sensory processing and sensory integration. I asserted that therapeutic interventions that focus on all three core areas (psychological, emotional and sensory) of the person's existence will result in an improvement in self- image and self-valuation. Such improvement will result in enhancement, enrichment and augmentation of the individual's quality of life thus enabling and strengthening the person's better overall functioning.
Years later, when I came across the concept of Human Capital I felt a need to explore whether it could provide me with a new way of conceptualization of sensory ability and its hidden potential. From my past work I knew that un-actualized potential has always been a central obstacle in the lives of people with complex developmental and other disabilities. As stated above I realized that in addition to the emotional and psychological areas of difficulties faced by many individuals with complex disabilities, there also exists in this multifaceted, handicapping condition an additional core area: that of the sensory system.
I asked myself whether the concept of "Capital" could provide us with new understanding and perception that would result in the development of new strategies to understand, intervene, treat and support the people we serve throughout their struggle to cope with their sensory challenges.
The Webster New World Dictionary (1997) defines Capital as: "wealth, in whatever form, used or capable of being used to provide more wealth....any source of benefit or assistance....the networth of a business amount by which the assets exceed the liabilities."
In the summer of 2008 I was able to defined sensory capital as: "The collective attitudes, skills and abilities within a person which contribute to a better organized nervous system in everyday life's context. It refers to the stock of sensory coping capacity, sensory skills, talents and unique capabilities embodied in an individual's ability to process and function within the world around us, and to perform day to day tasks.
Sensory Capital is the quality of the sensory assets an individual possesses, and the potential for those assets to be improved through therapy, education, and training. Actualization of the sensory capital promotes a more integrated functional sensory system.
The term Sensory Capital recognizes that sensory competencies are important and essential assets that assist in the development and growth of a person. The 'return' on any investment in sensory training, treatment, development, health and support is an improved quality of life." Baum
During the last little while my goal was to find a way to progress from the conceptualization stage of Sensory Capital to its operationalization. I wanted to create an intervention model that will assist us to practically implement in treatment the various possibilities and potentialities of the Sensory Capital concept and make it a treatment tool.
In this presentation I will reveal the intervention model I created with the hope that in the near future we will be able to examine its potentialities in practice and implement it in our work with the people we serve.
9:30am-12:30pm | Plenary 1
Keynote Presentations
9:30am-10:30am:
Marco Bertelli, MD
AMG Research and Evolution Centre, Italy
Currently the chair of the Section for Intellectual Disabilities of the World Psychiatric Association, Dr. Marco Bertelli has published about 70 papers, and made more than 120
congress lectures. Mental health, intellectual disability, quality of life, psychotic disorders, and behavioural problems are Bertelli's main subjects of interest.
INTELLECTUAL DISABILITIES AND THE MIND BODY CONNECTION
Abstract
Within mental disorders, Intellectual Developmental Disorders (IDD), formerly mental retardation or intellectual disability, show the highest cost and burden for individuals,
families and society. Furthermore, people with IDD have health conditions such as epilepsy, sensory impairment, respiratory problems, dental problems and incontinence, more often or
more seriously than the general population. Although life expectancy of people with IDD is longer than in the past, it is still significantly shorter than in the general population.
Despite this, people with IDD are more likely to have untreated morbidity and less likely to experience health promotion and disease prevention activities. When accessing primary care they may encounter barriers to high quality care including communication difficulties, behavioral difficulties, and lack of special GP training.
The present paper reviews prevalence of physical diseases and their relation to mental health problems in people with IDD. Results suggest that high co-occurrence of mental and
physical problems is a critical issue. IDD can be regarded as a model for studying the links between mental care and primary care. IDD can also provide a research model for possible
biological, psychological, social and developmental factors that might account for the frequent link between physical and mental ill-health in the general population. Results also
highlight that health systems are increasingly in need of a holistic approach and integration, covering all domains of health.
10:30am-11:30am
Dorita Berger, Ph.D., MT-BC, LCAT
The Music Therapy Clinic, USA
Concert pianist, educator, Board Certified Music Therapist, and New York State Licensed Creative Arts Therapist, Dr. Berger is an active international lecturer and consultant on
Music Therapy and physiologic function. Her expertise in Physiologic Clinical Music Treatment for Autism, Sensory Integration, and other diagnoses has led her to be a part of seminars and presentations at conferences around the world.
MUSIC THERAPY, SENSORY INTEGRATION AND THE AUTISTIC CHILD
Abstract
Autism characteristics and behaviours communicate that a system is in a state of "fear." In most instances, this state of "fear" is a result of a misinterpretation of sensory
information by the brain, thrusting the system into a fight-or-flight response. Music, consisting of six basic elements, can address a variety of sensory issues through carefully
targeted goals, applying particular music elements and interventions clinically to address physiologic aspects of the behaviour. This presentation discusses brain, sensory systems
and physiologic information processing that guide clinical music and the application of music elements in treating sensory integration aspects of behaviours in Autism and many other
diagnoses.
11:30am-12:30pm
Stephen Shore, Ph.D.
USA
Completing a Doctorate degree at Boston University, through extensive education and personal experiences Dr. Shore focuses on special education in relation to a wide range of
topics surrounding life in the Autism Spectrum. Specifically, the focus of Dr. Shore's dissertation towards doctorate was the true comparison between educational, behaviour and
developmental approaches for working with children on the autism spectrum.
SENSES AND SENSIBILITIES: AN INSIDE VIEW FROM THE AUTISM SPECTRUM ON SENSORY ISSUES, WHAT THEY LOOK LIKE, AVOIDING THEM, AND WORKING THROUGH ONES THAT OCCUR
Abstract
Many persons on the autistic spectrum experience sensory stimuli with such variation that it can either be completely causing extreme discomfort, or on the other hand, be
undetectable, and/or be so distorted as to be useless. All of these situations can be overwhelming, and at times dangerous. The aim of this presentation is to enable susceptible
individuals and those close to them to minimize the effect of or avoid such situations, thereby enabling those who have these sensitivities to take advantage of opportunities that
might otherwise be too overwhelming to otherwise even consider.
12:30pm-1:30pm | Lunch (provided)
1:45pm-2:45pm | Plenary 2
Experiential Sensory Presentation
Kelly Patterson, Corene Jonat, Annette Piggott, Lorie Edwards, Amy St. John, Sabrina Beardmore
DeafBlind Ontario Services, Newmarket, Canada
DeafBlind Ontario Services is a not-for-profit organization that supports adults with congenital deafblindness across the province in community based housing, intervenor services,
independent living skills and other specialized support.
Kelly Patterson is the Manager of Resident Services and Specialized Training for DeafBlind Ontario Services. Amanda Mesko, Annette Piggott, Lorie LeRiche, Sabrina Beardmore and Amy
St. John are Regional Resident Services Coordinators. Corene Jonat is an expressive arts therapist, arts coordinator/facilitator, arts teacher, designer and visual artist who
currently coordinates and facilitates the DeafBlind Ontario Services– Trillium Sensory Exploration Arts (SEA) program.
MEDIATING BETWEEN THE INDIVIDUAL AND ENVIRONMENT THROUGH A "TOTAL COMMUNICATION APPROACH" WHICH MEETS ALL SENSORY NEEDS
Abstract
Deafblind Ontario Services is an organization that provides intervention/support to adults who are congenitally deafblind. The combination of these sensory losses results in
specific challenges in acquiring language, educational, vocational and social skills. Support is provided to these adults to live within their community through the provision of
intervention, residential and other specialized services. All support and information must be deliberately taught and creatively presented to maximize each individual's potential for
understanding. This is facilitated through "Intervention" provided by an "Intervenor". "Intervention" means to go between or to mediate between. The "Intervenor" mediates between
the individual and his or her environment to enable him or her to communicate effectively with, and receive, non-distorted information from the world around them. This is facilitated through a "Total Communication Approach" which meets all sensory needs.
This will be an interactive/ demonstration "speed seeking" workshop focusing on how "Total Communication Approach" is facilitated while demonstrating a variety of methods specific to
the visual and auditory needs of the individual, or tools utilized, to provide a consistent delivery of this. The workshop will involve five separate presentations at each display.
Participants will have the opportunity to move around the room in a timed fashion (15 minutes at each table) and "seek" information from each presentation.
2:45pm-4:15pm | Parallel Sessions
Sandy McHugh, Certified Yoga Instructor
Shanti Wellness, Toronto, Canada
Sandy first discovered yoga in the fall of 2002. She began with Hatha, and has been practicing Ashtanga since 2006. Sandy completed her yoga instructor certification at the
Downward Dog Yoga Centre in 2007, and completed another 100 hour advanced teacher training course in 2009 also at Downward Dog. Yoga has made a huge impact on Sandy's life, so much so she left her corporate job in the fall of 2008 to teach yoga full time. She currently teaches at Stratusphere Yoga, Hot Yoga Wellness, Kraft, Lululemon Athletica, MukiBaum Treatment
Centres, as well as private lessons.
YOGA AND THE SENSES
Abstract
This workshop is an exploration of how the experience of a yoga posture can be influenced by the focus or elimination of different aspects of the senses. The main senses that apply
to asana (yoga postures) are sight, hearing, touch (sensing, feeling). Participants will perform or observe basic yoga poses. Postures will be repeated with different points of focus.
When it comes to sight, we will look, use Drishti, which is a point of focus, or gaze point. What will happen when we eliminate the sense of sight? When it comes to yoga
practice and what you hear, there is a debate on the effect of music used in yoga classes. Is music helpful or a distraction? How does the manipulation of the senses help you feel in
the postures? Other senses to be discussed are balance, smell and temperature. Registrants are encouraged to participate, offer insight, and ask questions.
Alejandro Brauer Vega, Ph.D.
STIMULO: Centre for Stimulation and Neurocognitive Development, Mexico
Alejandro is a psychologist who has combined his clinical practice with philosophical studies and research. He has founded a center for intellectually disabled adults in order to
establish a new cultural sense of the concept of disabilities in his native Mexico.
SENSORY STIMULATION AS AN IMPORTANT FACTOR TO ENHANCE SOCIAL INCLUSION
Abstract
What makes an individual conquer the world? What has contributed to make humans the most developed species? How can cognitive functions develop sensation and perception categories
that lead human thought to survive, develop, and transform the environment? All of these questions surface when we realize all of the difficulties that a child with a developmental
disorder faces. Although disability is no longer seen as a private issue, it is still true that people with intellectual disabilities and developmental disorders require more than
ramps to function independently in the world. Acknowledging sensory stimulation as a tool that enhances a diverse range of skills, this presentation will review several areas where
indicators can be developed in order to measure the impact of early sensory intervention on Social Inclusion.
Sari Weinberg-Binder, BAA (ECE.), M.Ed (Sp.Ed.)
Toronto, Canada
Sari Weinberg-Binder brings twenty-five years of experience and a diverse background to her work as an Early Childhood Specialist. She was the coordinator of the Preschool
Consultation Program at Ford and Associates, has served as a psycho-educational consultant for the Lincoln County Board of Education, and held the position of remedial resource
teacher for the Niagara Child Development Centre. She has thorough and specialized knowledge of child development and early education, experience with formal and informal assessment
tools, highly developed observation skills, and the ability to develop rapport with young children through a play-based format.
SUPPORTING CHILD DEVELOPMENT THROUGH PLAY
Abstract
This presentation provides an overview of the interrelatedness of play and development and its relationship to understanding and meeting children's individual and sensory needs.
Specific relational and play-based models of child development which serve as a framework within which to understand children's strengths and challenges will be outlined. Parents and
professionals will be introduced to practical guidelines on how to adapt interactions and environments to create meaningful exchanges and learning experiences to scaffold each child's development. Resources for incorporating these principles into developmentally appropriate practice and for observing and supporting children's unique strengths, needs, learning and
play skills will be recommended. In order to best support children's individual and sensory needs, professionals and parents can benefit from applying knowledge of play-based,
relational, developmental models to their interactions with children. In this way, teachers, parents, caregivers and therapists can adapt their environments to scaffold the child's
experiences and provide opportunities for interaction and learning. An introduction to development and play theory as well as practical resources for the application of theory to
best practice will be presented. Participants will learn the benefits of applying knowledge of developmental and play principles to their work with individual children. The goal is to
adapt the child's environment through developmentally appropriate practice to ensure we are supporting their individual and unique strengths, needs, learning style and play skills.
Resources will be recommended for observing and encouraging development, play and learning. The participants will learn: • about developmental, relational and play based models that
positively impact our understanding of children's individual profiles, including sensory strengths and needs • about the importance of play and its relationship to development,
learning and programming • about resources to create relational and meaningful interactions and environments to support the needs of individual children.
Carmit Cahana, MScpt.
National Institute of Child Health and Human Development, Israel
Carmit Cahana is a certified physiotherapist educated in Israel with an interest in neuro-development issues. She was appointed the chief physiotherapist to the medical director of the Division for Mental Retardation under the Ministry of Social Affairs in Israel. In this capacity, she is responsible for the physiotherapy service to all 396 residential care
centers in Israel for persons with intellectual disability. She has presented and published her work on assistive technology, physiotherapy, multi-sensory stimulation and intellectual disability at various international forums and in international journals. She is also a lecturer and researcher at the National Institute of Child Health and Human Development in
Israel.
SNOEZELEN AND JUVENILE DELINQUENCY
Abstract
Juvenile delinquency is defined as a crime performed by a young person who is legally considered to be a minor. Research has shown that juvenile offenders come from all social
economic levels. Regardless of whether such young offenders come from broken homes or from what can be considered as "good families" the offenses that these youth often commit are
street crimes that include drug trafficking, sex offenses, extreme violence and so on. In Israel a goal that is part of this punishment process, in addition to the incarceration in a
locked residential facility is also to focus on using this time to providing general education as well as teaching normative behavioural habits.
This presentation will focus on a 2 year project composed of 18 boys who had a rigid life routine, and the incorporation of a Snoezelen intervention into their daily lives (usually
applied to a population of individuals with special needs).
Kelly Delaney, SPMHN
Canadian Mental Health Association, Canada
Part of the Canadian Mental Health Association at the Durham Region Branch, Kelly Delaney is a nurse at the Primary Care Clinic and the developer of the Healthy Living Program. She
is currently involved in a partnership with COPE, a program that provides mental health services to adults and their caregivers, and is offering the Program throughout the Durham
Region.
THE HEALTHY LIVING PROGRAM: NUTRITION AND MENTAL HEALTH
Abstract
The use of antipsychotic medications has been associated with metabolic side effects including weight gain, dyslipidemia and susceptibility of type 2 diabetes. Although it is difficult to separate the contributions of mental health illness, medication and lifestyle to the development of cardiovascular disease and diabetes, there is now evidence to support the need for ongoing assessment and monitoring of patients receiving antipsychotic medications. Therefore it is clear that early identification and treatment of individuals in high risk categories are important. Interventions will need to have realistic goals, be highly structured, offer early and intensive support and allow these supports to continue over time.
In emphasizing this need to improve the quality and balance of life and to monitor for the risks of Metabolic Syndrome for individuals living with a mental health illness, The Healthy Living Program (HLP) was developed. This eight week program encourages individuals to utilize self-management techniques and to provide knowledge for the participants on healthier behaviors and illness and helps them to overcome any barriers that they may be experiencing. This program provides an opportunity to educate its participants so that they can utilize interventions that reduce the vulnerability related to mental illness and enhance natural strengths in the individual and the community.
Meaghan Edwards, B.A. (Hons.) Cert. CBR
MukiBaum Treatment Centres, Toronto, Canada
Meaghan is from Nova Scotia and studied social research methods in her undergraduate degree and has obtained a certificate in community based research. She is the Supervisor of
Research and Evaluation at MukiBaum Treatment Centres and coordinates several projects including: Health and Wellness, Family Quality of Life, Environmental Impact and transitions for individuals with complex disabilities. She supervises undergraduate students in the fields of applied research and psychology and has presented her research at conferences and in
peer reviewed journals. Meaghan works closely with community and university partners to produce sound and responsible community based research.
Michael Holder, B.A. (Hons.)
MukiBaum Treatment Centres, Toronto, Canada
Currently a member of the Research Department at MukiBaum treatment Centres, Michael's present work focuses on the development of research and data gathering methods built around
the Quality of Life model. With an educational background in Criminology and Sociology, previous experience includes research work on aggression and policy at The Centre for Addiction and Mental Health, and a background working with disadvantaged populations at The Aids Committee of London, Ontario.
APPLIED RESEARCH IN NUTRITION FOR INDIVIDUALS WITH DEVELOPMENTAL AND EMOTIONAL DISABILITIES
Abstract
For individuals with developmental or intellectual disabilities, the consistent intake of balanced meals high in nutritional value is essential for overall well-being and often
dependent on service providers. The population's specific and varied needs make the delivery, monitoring, and reporting of food consumption and eating habits quite challenging tasks.
This talk presents the findings, challenges, and methods of an applied research project evaluating the nutritional intake of individuals served at MukiBaum Treatment Centres. Along
with outlining the change itself, the inputs and strategies will be examined and described, especially as related to the creative use of data in applied research.
The importance of quality of life outcomes at MukiBaum led the research team to explore and apply new methods of data gathering to not only assess nutrition but also to plan
nutritional interventions, monitor progress and create sustainability. Data collection is on-going and is organized in three stages 1. Initial, baseline, assessment of nutrition; 2.
Assessment of nutrition pre-intervention; 3. Assessment of nutrition post intervention. The data collection was planned in such a way as to promote engagement, interest, and active
involvement from staff, supervisors and the people we serve.
Overall results show that significant gains have been made in the nutrition of the people served and the knowledge of staff regarding balanced meal preparation. These improvements are
linked to the creative, sensory conscious, use of research data.
Meaghan Edwards, B.A. (Hons.) Cert. CBR
MukiBaum Treatment Centres, Toronto, Canada
Meaghan is from Nova Scotia and studied social research methods in her undergraduate degree and has obtained a certificate in community based research. She is the Supervisor of
Research and Evaluation at MukiBaum Treatment Centres and coordinates several projects including: Health and Wellness, Family Quality of Life, Environmental Impact and transitions for individuals with complex disabilities. She supervises undergraduate students in the fields of applied research and psychology and has presented her research at conferences and in
peer reviewed journals. Meaghan works closely with community and university partners to produce sound and responsible community based research.
Sara Sadovnik
Elwyn Israel, Israel
Sarah Sadovnik is the Executive Director of Elwyn Israel in Jerusalem. Elwyn Israel is a centre serving more than 2000 children and adults with special needs.
POSTURAL HEALTH, ENVIRONMENTAL MODIFICATIONS AND QUALITY OF LIFE
Abstract
Individuals with a developmental or intellectual disability (DD/ID) tend to experience health problems more frequently, more severely and at an earlier age than the rest of the
population. One such health concern is poor postural and musculoskeletal health.
The purpose of this study is to determine the risks to postural, musculoskeletal health in individuals with DD/ID attending a day program (specifically a vocational, workshop program) and to measure the impact of specifically designed interventions aimed at improving health in this area. The study is a part of MukiBaum Treatment Centres' Health and Wellness Program
Applied Research Project consisting of several distinct projects related to holistic, overall wellness and quality of life for individuals with ID/DD and other complex diagnoses. The
importance of the project has led to an international partnership with a similar program in Elwyn Israel, and data from this centre will also be presented.
The study has several distinct phases: pre intervention assessments of postural and musculoskeletal health risks in the environment, adaptation of furniture, introduction of in-depth
training, and further environmental adaptations. Measures include professional assessments, photographic data, observations and interviews with individuals attending the program.
Specifically, the first phase of the project (the impact of adapting furniture in a vocational, sheltered workshop program) will be examined.
Results will be presented regarding the impact of adapted furniture, the need for further training and the ways in which the international partnership has revealed commonalities and
differences in the success of interventions based on postural and musculoskeletal health.
The study is on-going, and future directions will be discussed as well as ways in which the project will be expanded to other programs including the Sensory Program.
J. Roberto Nascimento, M.A. Expressive Arts Therapist
MukiBaum Treatment Centres, Toronto, Canada
Roberto has over 20 years of experience providing psychotherapy. He specialises in "Therapy Through Games" as well as Art Therapy. His background includes teaching Psychology at
Teacher's College in Sao Paulo, Brazil, and over nine years of experience providing psychotherapy for The 519 Community Centre in Toronto where he was presented a Certificate of
Appreciation from the House of Commons of Canada. He was Assistant Director of Psychodrama and a member of the Psychodrama Training program in Toronto. His educational background
includes Expressive Arts Therapy training, as well as a Master's Degree in Expressive Arts Therapy.
TRUE COLOUR OF DISABILITY
Abstract
Expressive Art Therapy is a psychotherapeutic approach that uses the arts as its media. Through the various modalities, the person has the opportunity to get in touch with his/her
inner world and is able to work through emotional challenges. Expressive arts therapy provides people with a means through which to express and communicate.
It offers them a safe avenue through which they can relate to their thoughts and feelings in a safe and creative way. Such a process lends to an expansion of the ability to create,
re-create, shape, reshape, construct, and deconstruct. It presents the person with an instrument to find a meaning that signifies the purpose of being. This type of a process is
universal to each human being including people with complex disabilities such as the people we serve at MukiBaum Treatment Centres. Expressive arts therapy touches us on the
competency of expression, and enables us, among other things, to enhance the development of expressions. Expressive Arts Therapy recognizes that we naturally experience and relate to
our environment on a non-verbal level through sound, movement and image. Pre-language communication takes the form of vocalizations, gestures and image making. As such, emotional or
psychological disturbing events are experienced on this non-verbal level. Thus, Expressive Arts Therapy offers us a common familiar language with which to describe, express and
communicate.
The combination of low skill, high sensibility, multi-focal approach, and quality of life enables the process of expressive art therapy to establish a foundation for the true colour
of disability. It provides an opportunity for developing a more satisfactory meaning for the person who is involved in the therapeutic process.
Dror Enbar, M.A, Psychodrama Therapist
MukiBaum Treatment Centres, Toronto, Canada
Dror Enbar, M.A is a Psychodrama therapist who is a graduate of Lesley University in Boston. He studied Philosophy and graduated from Tel-Aviv University, worked for three years in the emergency department in one of the major psychiatric hospitals in Israel, and eventually joined MukiBaum Treatment Centres in 2003 working at the Adult Day Program.
WINDOW TO "HERE AND NOW" LAND:
BLOCKS WE CAN USE TO BUILD WALLS AND BRIDGES
Abstract
Working with the people we serve is an adventure. Explaining to other people about it causes a bit of a challenge. Unfortunately, people who are not familiar with people served and do not know them well often say to me, as a therapist "what is the point in such work?" I feel that the reason why they are asking stems from the wrong impression that there must be a right answer to the question of gaining happiness and hope in our life.
Historically our society developed this rigid, clear and concrete line between those who seem to be able to find ways to improve their life and others who are perceived as incapable
of doing so. That is the perception is that the disabilities that people have, by definition, are blocking all of their options to find the path and will take them through that
journey. And again I am asked: "What can you offer the people you work with that will make a difference?"
In this workshop I would like to give an opportunity to participants who while being curious about this issue are also interested to take the risk of letting go of their stereotypes
while experience a new way of looking of this issue. Participants will experience activity in a similar setting to the one I offer to the people we serve. For the experience we will
use psychodrama which is a powerful modality that can be accessible to all.
4:15pm-4:30pm | Nutritional Break
4:30pm-6:30pm | Plenary 3
4:30pm-5:30pm
Roy I. Brown, BSc, Dip Psych, Ph.D., FIASSID
Professor Emeritius University of Calgary, Canada & Flinders University, Australia
Professor Emeritus at both the University of Calgary and Flinders University in Australia. Roy is also Adjunct Professor (at the School of Child and Youth Care) at the University
of Victoria, Canada and the University of New England Australia. He is Director of the IASSID Academy of Education Teaching and Research. Roy actively practices as a renowned
international consultant on disabilities, and is a Consultant to the Down Syndrome Research Foundation in Burnaby, British Columbia. His recent research in developmental disabilities
relates to family and individual quality of life. His focus is translating research into practice.
PERCEPTION AND SENSATION: CHALLENGES TO BEHAVIOUR IN FAMILY LIFE WHEN THERE IS A CHILD WITH A DISABILITY
Abstract
The research literature into family life is demonstrating some of the major challenges facing parents when there is a child with a disability. Those challenges are often increased
when there is a child with multiple and emotional disabilities. Although we are becoming increasingly aware of many of the practical issues, the availability of recent family quality
of life data from a variety of sources provides insight, through quantitative and qualitative material, into the personal and related effects for family members. While these are often seen as side effects, here they are examined as major issues confronted by members of the family.
Challenges can give rise to major stresses for individuals and families but these are affected by a person's resilience. So the question is how can resilience be boosted? Issues which need to be considered in this context are sensory issues such as reaction time, and the overall impact on all the senses and how these are dealt with. Such stressors affect our
perceptions and therefore our behavioural reactions. The impact may cause us to over or under react to sensation and sensory input. Such stressors affect our perceptions and therefore our behavioural reactions. The impact may cause us to over or under react to sensation and sensory input. Becoming aware of how we behave and how we respond is an important first step
in our ability to adjust. It influences how we interpret what people say to us; do we stop listening or hearing and do we ignore visual cues we get? Do we negate tactile input? Do we
become fatigued by the flood of sensory stimuli? Do we withdraw as a result so we become highly selective to all sensations not just consciously but unconsciously? Most importantly,
how are our hopes and wishes impacted over the short and long term?
The presentation examines, in some depth, the nature of these personal challenges and experiences and their implications for both individual family members and the family as a whole.
Further, we look into the nature of the effects on relationships within the family and the emotional experiences of family members and the potential ramifications in all aspects of
their life. We also focus on how senses and sensibilities are affected and experienced. It is argued that these aspects are rarely dealt with as pressing, but are looked at as natural expressions of feelings and sensations. However, even if we agree that it is important to deal with concrete practical issues in life, the emotional and physical experiences and
sensations which individuals face need to also be understood and appreciated in greater depth.
This presentation discusses some of the challenges and argues for a much broader and empathetic approach, not just when a family reaches a crisis point, but well before, so
understanding and enlightened support can be provided to stabilize and enhance the quality of individual and family life.
5:30pm-6:30pm
Ciro Ruggerini, MD
Università di Modena e Reggio Emilia, Azienda Policlinico Modena, Italy
Receiving an M.D. from the Medical School of the University of Modena, Dr. Ruggerini is a specialist in Child and Adolescent Psychiatry and a certified Psychotherapist of the
Italian Society of Cognitive-Behavioural Psychotherapy. His experience working with persons with mental disabilities led him to a strong interest in the common confusion between
diagnoses and the individual, and on how identity is formed through social interactions.
PEOPLE WITH COMPLEX DISABILITIES IN RESIDENTIAL SETTINGS: FOUR FACTORS FOR QUALITY OF LIFE IN AN ECOLOGICAL SENSORY BASED SETTING
Abstract
Outcomes of sensory training in persons with intellectual disability and a comorbid pervasive development disorder: an experience of ecological sensory training in residential
setting.
Persons with intellectual disability and comorbid pervasive developmental disorders in residential settings have complex medical, psychiatric and neurological needs that go beyond the limits of care provision in family or community setting. Despite these complexities, these persons have opportunities to improve their quality of life in residential setting. The
presentation aims to give a ray of hope based on our experience.
We studied life stories and clinical records of 10 individuals with dual diagnosis (intellectual disability and pervasive developmental disorder) who moved into accommodation at ASP
Charitas in Modena. We examined diagnosis at entrance, psychotropic drug medication, treatment and rehabilitation planning. Personal narrative reports are used to evaluate the
outcomes on the basis of symptom presentations, medication levels, and improvements regarding adaptive functioning and participation. Individuals took part in sensory training in an
ecological setting (a riverside fitness course) as a part of the rehabilitation program.
Narrative reports of workers reveal positive behaviour changes in participants caused by the sensory training; these behaviour improvements have made it possible to employ other
traditional treatment and educational methods like TEACCH. Positive outcomes result in reductions of symptom presentations and medication as well as enhancements in social and family
participation.
6:30pm-9:30pm | Special Evening Programing including dinner
7:30am | Registration opens
8:00am-8:30am | Coffee Station Opens
8:30am-10:30am | Plenary 4
Keynote Presentations
8:30am-9:30am
Nicola Clare Grove, Ph.D.
Openstorytellers, City University, UK
Nicola Grove started her working life as an English teacher before training as a speech and language pathologist. She has worked for 30 years in the UK with people with
intellectual disabilities, pioneered the use of classic literature in the curriculum for children with special needs, and later set up the first inclusive storytelling course for
people with learning and communication difficulties. She is now Director of Openstorytellers, a charity which helps people with disabilities to find meaning in their lives through
sharing stories – personal and mythical.
NARRATIVE WITH NON-SPEAKERS: SHARING STORIES OF OUR LIVES
Abstract
Narrative recall of personal experience is critical to the formation of personal identity, fundamental to the process of decision making, and is one of the main ways in which
people make and sustain friendships over the lifespan. For people with severe communication difficulties, this kind of anecdotal storytelling is extraordinarily difficult. Evidence
suggests:
- Staff and families tell stories ABOUT people with high support needs, but not WITH them
- Lives are dominated by routines, so there are few reportable experiences. This reduces the likelihood of recall, limits the potential for social
learning and leads to a lack of motivation to tell
- Experiences that could be made into stories pass unnoticed or are told only by staff.
- Social networks are restricted, so there are few people interested in hearing a story.
Additional problems include the difficulties for families in recalling highlights from their children's lives and the prioritization of choice and control over issues of social
inclusion. StorysharingTM is an innovative collaborative approach to narrative based on the study of anecdotal conversation, which has now been used with over a hundred people with
disabilities in the UK. In this presentation, Nicola Grove, who developed the approach, will demonstrate the process, discuss the evidence for its effectiveness, and consider the
role of storytelling in the lives of people with disabilities.
9:30am-10:30am
Toyojiro Matsuishi, MD
Department of Pediatrics and Child Health, Kurume University School of Medicine, Japan
Dr. Toyojiro Matsuishi is a professor in the department of Pediatrics and Child Health, and the Director of the Cognitive and Molecular Research for Brain Diseases Department, at
Kurume University School of Medicine in Japan.
INNOVATIONS IN HEALTH IN CHILDREN WITH INTELLECTUAL DISABILITIES
Abstract
An ongoing aim at our institution has been to establish innovative biological markers and early effective intervention for children with intellectual disabilities (ID), especially
autism, Rett syndrome, attention deficit hyperactive disorder (ADHD), and adolescents with psychological impairment. We introduce sophisticated biological markers, and the efficacy of new therapeutic trials. We also emphasize the importance of children's sleep conditions for parents or caregivers.
To evaluate the development of visual cognitive function and establish a screening method for children with Asperger's disorder (ASD), and juvenile onset schizophrenia (JOS), we
examined exploratory eye movements (EEM) in 24 healthy subjects, 29 patients with ASD, and 24 patients with JOS using an eye-mark recorder. A total of 137 children diagnosed with
ADHD, age 6 to 12 years, participated and evaluated the efficacy of a summer treatment program (STP) during 2005-2009. The salivary cortisol awaking response level was investigated to evaluate the hypothalamus-pituitary-adrenal axis in children with AN. To investigate the changes of regional cerebral blood flow (rCBF) in AN before and after weight gain, we examined resting rCBF using IMP-SPECT and statistical parametric mapping (SPM). To investigate the role of plasma ghrelin, novel biological markers in patients with autonomic nervous system
and somatic growth dysfunction, we measured plasma ghrelin in 27 patients with Rett syndrome (RTT) and compared results with the controls. We sought to establish the utility of a
sleep log and actigraphy studies in healthy children and reported the importance of sleep disturbances in patients with autism, Angelman syndrome, mitochondrial diseases and other ID.
EEM recorded by an eye-mark recorder is a useful tool for estimating the development of visual cognitive function and a useful screening method for ASD and JOS. We found that most
children with ADHD showed positive behavioural changes in multiple domains of behaviour and cognitive functions using CogState during an STP. Relatively increased rCBF in the
bilateral parietal lobe and limbic lobe including the posterior cingulate cortex were observed after weight gain in AN. Plasma levels of total and octanoly-ghrelin were significantly
lower in patients with RTT. Handy actigraphs were reliable and useful for the evaluation of sleep disturbances in patients with ID.
EEM recorded by an eye-mark recorder and SPM SPECT were useful tools for evaluating visual and cognitive development. SPM SPECT reflects cerebral blood flow changes and impairment in
children. The salivary cortisol awaking response is useful for evaluating stress in patients with AN. STP is a useful intervention in children with ADHD. Ghrelin reflects the
autonomic nerve dysfunction and may be a novel biological marker in patients with RTT. Objective sleep evaluation is important and useful in patients with ID and their family.
10:30am-10:45am | Nutritional Break
10:45am-12:45pm | Plenary 5
Keynote Presentations
10:45am-11:45am
Charlotte Codina, Ph.D.
University of Sheffield, UK
Initially graduating as an Orthoptist from The University of Sheffield (UK), Dr. Codina was granted a PhD scholarship by the Royal National Institute for the Deaf (RNID) which
funded investigations into visual compensations for deafness in profoundly deaf children and adults. She has done clinical work at Moorfields Eye Hospital in London and is now a
lecturer at The University of Sheffield's Academic Unit of Ophthalmology and Orthoptics. She has continued to study vision in deafness and vision in Autism, as well as that in
patients with vestibular difficulties including balance disorders and visual vertigo.
VISION, DEAFNESS AND THE SENSORY EXPERIENCE
Abstract
The sensory experience of individuals with early onset profound deafness clearly differs to that of hearing individuals. Indeed, a lifetime without hearing may provoke large
changes in the brain's processing of sensory information. For example, in profound deafness, the auditory cortex processes information from non-auditory signals, especially from
peripheral (i.e. non-central) vision. This additional visual processing in deaf adults leads to more sensitive peripheral vision and the area within which deaf adults perceive visual change appears enlarged by up to 154% compared to hearing adults. Within this area deaf adults notice visual changes significantly faster than hearing adults. Deaf individuals use
peripheral vision to monitor the environment for potential change and danger and 'tune in' to peripheral changes whilst focusing on intense visual information such as reading speech.
These supra-normal visual abilities in deaf individuals however are not present in early childhood, and young deaf children (age 5-8 years old) do not perform as well on peripheral
vision tasks as hearing children when the task is made very sensitive. Thus supra-normal peripheral vision is not identifiable until after peripheral vision has matured and a deaf
advantage is first noticed by early adolescence. Typical development appears supported by the integration of senses, and development of one sense in the absence of another may lead
to a slower yet eventually more sensitive system. The effect of signed language is also important as it makes use of peripheral vision. Individuals communicating in a signed
language hold their gaze to one another's faces and eyes whilst perceiving hand movements peripherally. Peripheral vision in hearing adults can be enlarged by frequent use of sign
language, though not to the degree found in deaf adults, and no differences are found in the vision of those deaf adults who use sign language and those who do not.
11:45am-12:45pm
Jeff Buchhalter, MD
Phoenix Children's Hospital, Neurophysiology, USA
Dr. Jeffrey Buchhalter, a Pediatric Epileptologist previously with the Mayo Clinic-Rochester, now leads the Comprehensive Pediatric Epilepsy Program within the Phoenix Children's
Hospital's Neuroscience Institute. In 2009, the Phoenix Children's team of specialists treated a total of 1,251 children inpatient and 629 in an outpatient setting.
AUSTIM, EPILEPSY, AND THE SENSORY EXPERIENCE
Abstract
The association of autism and seizures was mentioned in one of Kanner's early descriptions of autism in 1943. However, it was not until the 1980's when it was realized that
epilepsy occurred with a significantly greater incidence in individuals with autism spectrum disorder (ASD) than the general population. However the real increase in incidence has
been both over and under stated. The reason for the wide range of reported occurrence (5-45%) is related to the reality that there is great difference in children with autism and the
studies used different methodologies. This presentation will focus on several questions: What is the incidence of electroencephalographic abnormalities in individuals with ASD? What is the incidence of seizures and epilepsy? What is the relationship of epilepsy to regression in individuals with autism? What is the evidence that treatment affects the EEG and
symptoms of autism? The potential relationship of sensory systems to seizures in ASD will be explored.
12:45pm-1:30pm | Lunch (provided)
1:30pm-3:30pm | Plenary 6
1:30pm-2:30pm
Jason Staal Psy. D.
Albert Einstein College of Medicine, USA
Jason A. Staal is an assistant professor of Psychiatry of the University Hospital and Manhattan Campus for the Albert Einstein College of Medicine and Supervising Psychologist at
the Department of Psychiatry at the Beth Israel Medical Center. Dr. Staal conducts multisensory environment clinical trials based on the integration of the theory and practice of
behaviourism and multisensory environments. Dr. Staal has published articles in peer reviewed journals, lectured internationally and he has appeared on numerous television and radio
shows, and in the Science Times of the New York Times.
THE EFFECTS OF SNOEZELEN (MULTI-SENSORY BEHAVIOUR THERAPYAND PSYCHIATRIC CARE ON AGITATION,
APATHY, AND ACTIVITIES OF DAILY LIVING IN DEMENTIA PATIENTS ON A SHORT TERM GERIATRIC PSYCHIATRIC INPATIENT UNIT
Abstract
A randomized, controlled, single-blinded, between group study of 24 participants with moderate to severe dementia was conducted on a geriatric psychiatric unit. All participants
received pharmacological therapy, occupational therapy, structured hospital environment, and were randomized to receive multi-sensory behaviour therapy (MSBT) or a structured activity session. Greater independence in activities of daily living (ADLs) was observed for the group treated with MSBT and standard psychiatric inpatient care on the Katz Index of Activities of Daily Living (KI-ADL; P=0.05) than standard psychiatric inpatient care alone. The combination treatment of MSBT and standard psychiatric care also reduced agitation and apathy
greater than standard psychiatric inpatient care alone as measured with the Pittsburgh Agitation Scale and the Scale for the Assessment of Negative Symptoms in Alzheimer's Disease (P=
0.05). Multiple regression analysis predicted that within the multi-sensory group, activities of daily living (KI-ADL) increase as apathy and agitation reduced (R2 = 0.42; p = 0.03).
These data suggest that utilizing MSBT with standard psychiatric inpatient care may reduce apathy and agitation and additionally improve activities of daily living in hospitalized
people with moderate to severe dementia more than standard care alone.
2:30pm-3:30pm
Rhonda McEwen, MBA, MSc, Ph.D.
University of Toronto, Canada
Dr. Rhonda McEwen is an Assistant Professor at the Institute of Communication, Culture, and Information Technology at the University of Toronto. She holds an MBA in IT from City
University in London, England, an MSc in Telecommunications from the University of Colorado, and a PhD in Information from University of Toronto. Dr. McEwen's research and teaching
centres around information practices involving new media infrastructures, with an emphasis on youth media literacy, mobile communication, and social media design. She has worked and
researched digital communications media for 15 years, both in companies providing services and in management consulting to those companies. McEwen is currently researching the use of
iPods, iPads, and mobile communication devices by non-verbal autistic children for communication and sociality in Toronto school settings.
MEDIATING SOCIALITY: DESIGNING CONVERSATIONAL SPACES FOR NON-VERBAL COMMUNICATORS
Abstract
This presentation describes a research project that explores the roles that lower cost, handheld touch-technologies may play in the classroom instruction of children diagnosed on
the autism spectrum. In this study we explore and assess the roles that handheld touch technologies can play in the communication and sociality of children with communicative
disorders, with a primary emphasis on non-verbal autistic children. The project began in November 2009 and is scheduled for completion in December 2011. We are focused on using the
iPod Touch devices and a range of applications, including iCommunicate and Proloquo2Go. In phase 1, while there were gains in communication for all participants ranging from mild to
significant improvement, for 9 of the 12 students during the five-month study period significant gains were made in the area of communication. One of the more rewarding consequences
of introducing the iPod Touch into the classroom was in the area of social interaction. Observations were made about the heightened level of engagement that students with ASD
exhibited when using applications with haptic feedback.
3:30pm-3:45pm | Nutritional Break
3:45pm-4:45pm
Dr. Dan Goldowitz, Md
Department Of Medical Genetics, University Of British Columbia, Canada
Dan Goldowitz received his PhD in Psychobiology at the University of California at Irvine with a thesis that focused on the plasticity of the adult central nervous in response to lesions. His subsequent postdoctoral work at Harvard Children's Hospital in Boston, the Karolinska Institute in Stockholm, and the University of Utah School of Medicine in Salt Lake City was in the development of the nervous system. His first position was as an assistant professorship at Jefferson Medical School in Philadelphia. Using approaches that were relatively novel to the study of the brain he pioneered approaches to ascertain the function of genes in brain and behaviour. He moved to the University of Tennessee Health Science Centre (UTHSC) in Memphis and was a leading force in organizing researchers across the State of Tennessee in forming a collaborative to use the mouse as a model organism to identify the function of the genes that were just being uncovered with the human genome project. The Tennessee Mouse Genome Consortium was the result of these efforts and this collaborative won one of three US National Institute's of Health (NIH) awards (amounting to about US$13,000,000 over 5years with D. Goldowitz as the Principal Investigator) to understand the role of genes in the function of the brain. This success led the University of Tennessee system to create a US$6,000,000 in a program to fund a Centre of Excellence in Genomics and Bioinformatics proposed by Goldowitz. He also worked with other individuals at UTHSC to obtain NIH funding for projects to bring science education to the K-12 grades. He was awarded an endowed chair of Neurosciences at UTHSC. These efforts have resulted in national and international collaborations that Dan brought to Canada (the Centre for Molecular Medicine and Therapeutics at the Children and Family Research Inst at UBC). He currently holds a Tier 1 Canada Research Chair. He maintains strong NIH- , CIHR- and foundation-funded research programs in the genetics of brain development and function. After a bit more than one year in Canada the call for proposals from the Networks of Centres of Excellence (NCE) was published. A survey of the research landscape indicated that Canada had some incredible strength in brain development, both clinically and in the basic sciences, but that they were not united in a way that could bring a synergy that seemed possible. From this as a vantage point, and with a focus of creating a marriage between the clinical and basic sciences, Goldowitz led a successful application to be one of three new, federally funded NCEs, NeuroDevNet.
Advances In Understanding The Developing Brain
4:45pm-6:00pm
A Snoezelen Experience, Flaghouse Canada
Poster Presentations
MukiBaum Art Show
Exhibitor Showcase
(Please note: presenters will be available in all of these experiential events).
7:30pm-10:00pm | and Beyond… Evening of Inspiration and Banquet
7:30pm | Dinner
8:30pm | Personal Journeys
Margaret Clarke, MDUniversity of Alberta
Dr. Clarke is currently a Professor in the Faculty of Medicine, Departments of Pediatrics and Psychiatry and is also an Adjunct Professor of Psychiatry at the University of Alberta. She was recently named one of the 100 top physicians of the century by the Alberta Medical Association, and received a Centennial Medal in recognition of her unique contributions to the field of child health and development in Alberta
Stephen Shore, Ph.D.
Adelphi University, Long Island, New York
Completing a Doctorate degree at Boston University, through extensive education and personal experiences Dr. Shore focuses on special education in relation to a wide range of topics surrounding life in the Autism Spectrum.
Specifically, the focus of Dr. Shore's dissertation towards doctorate was the true comparison between educational, behaviour and developmental approaches for working with children on the autism spectrum.
Evening of Inspiration
Topic: Life on and Slightly to the Right of the Autism Spectrum: An Inside View Towards Success
Abstract
Join Stephen in his autobiographical journey from the nonverbal days as he relates his life to the many challenges facing people on the autism spectrum. Some of the areas discussed include classroom accommodation, teaching of musical instruments, as well as issues faced by adults such as relationships, self-advocacy, higher education, and employment.
The session ends with a short audience activity demonstrating what it feels like have autism and to struggle through some of the challenges surrounding communication and socialization.
Barbara McCormackFlaghouse, Toronto, Canada
Parent of a child with complex disabilities, Barbara McCormack is Vice President of Snoezelen & Flaghouse, a global supplier of physical education equipment and products for professionals who deal with children and adults with physical and developmental disabilities.
Evening of Inspiration Topic: From Childhood to Adulthood - A Sensory Journey
Abstract
In this presentation Barbara describes her daughter Sarah`s transition through childhood to adulthood with the constant need to keep sensory awareness and activity at the forefront of Sarah's very limited world. Now Sarah has left school and begun a new life of profound enrichment and community integration with the expert support of Jane, an
intervenor for the deafblind. Between them, Jane and Barbara have Sarah blazing new trails as a community service volunteer while learning new skills to express her intentions, understand her world and - literally - find her feet!
Louise Russo
W.A.V.E., Toronto, Canada
For the last six years, Louise Russo has visited around 50 schools touching over 30,000 students. By sharing her personal story as a victim of violence, she sheds light into the effects of violence on the victim and the family, and how she has moved forward with her life by creating a charitable organization known as WAVE. Recognizing the'Good Works' of youth across the GTA and surrounding area, the goal of
WAVE is to inspire young individuals and members of the community to take action, make positive choices, and initiate projects to make their schools and communities a safer place to live, learn and play.
Evening of
Inspiration topic: Working against Violence Every Day
Abstract
On April 21, 2004 I had just walked into to a sandwich shop when an explosion of gunfire erupted. The bullets severed my spine and I spent nearly 9 months in hospital. Life was already challenging with a severely disabled daughter. In telling my story I will speak about my life prior to the injury, how it changed and how deeply it impacted me and my family.
With hard work and determination I have been able to take something so tragic and turn it into something positive.
I could write a book about what life in a wheelchair is really all about. On the surface, someone can see the basic challenges in reaching for items, being cautious of every sidewalk crack, being unable to participate because of the lack of accessibility, but alongside these challenges are the deeper, tougher issues I deal with daily. As someone who was able bodied for 45 years, being suddenly wheelchair dependent is beyond overwhelming. How society often looks at me and treats me are really the most difficult of challenges. I have been blessed with resilience, courage and strength in order to manage and cope with all these challenges. And it is because of my faith and resilience I have been able to move forward. Part of my moving forward includes a charity I founded in 2005 called Louise Russo W.A.V.E. (Working Against Violence Everyday). As the founder of W.A.V.E we work diligently
at inspiring youth and members of the community to take action, make positive choices and initiate projects that will make their schools and communities a safer place to live, learn and play.
I approach life with a sense of humor and a strong sense of belief in myself. "Just Believe" gives me the strength to move forward each day and see the world through a different lens.
Open Mic – An opportunity to share personal stories and experiences.
Saturday, October 22, 2011
7:30am | Registration Opens
8:00am-8:30am | Coffee Station Opens
8:30am-10:30pm | Plenary 8
Keynote Presentations
8:30am-9:30am
Paula Aquilla,, DO, B.Sc., OT, Reg. (ON),
Toronto, Canada
Occupational therapist and co-author of Building Bridges through Sensory Integration, Paula Aquilla has worked with adults and children in clinical, educational, home, and community-based settings. She is the founder of the Yes I
Can! Integrated Nursery School, Yes I Can! Summer Camp, as well as the "I Love My Baby" Program in Toronto. She has been involved in the development of the MukiBaum Sensory Motor Therapy Centre and serves as a consultant and mentor at MukiBaum Treatment Centres.
How Osteopathy Supports Sensory Processing
9:30am-10:30am
Nehama Baum, Ph.D., C.Psych.
MukiBaum Treatment Centres, Toronto, Canada
Dr. Baum is the founder and Executive Director of MukiBaum Treatment Centres. Having worked at the Israeli Ministry of Education, Dr. Baum moved to Canada where she received a Ph.D. in Clinical Psychology at the University of Toronto.
She founded MukiBaum Treatment Centres, which assists children, adolescents and adults with dual diagnosis (developmental and emotional/psychiatric disorders). Dr. Baum is
dedicated to improving the quality of life of people with disabilities through various means including sensory therapy, art education, expressive arts therapies and sandplay therapy which she pioneered in Canada.
THE SENSORY EXPERIENCE OF AGING
Abstract
Talking about aging automatically creates in us an association with being old. The reality is, however, that the process of aging begins at the moment we are born and continues throughout our life. It is somewhat natural for young people to not associate the process of aging with themselves. They do not think about this process as a continuous aging process. Rather, for them this process is synonymous with being old. For older people, growing older causes a change of perception and becomes the marker of the changes associated with the process of becoming old.
Individually and collectively, in society, when we think about the changes that occur when we get older we often focus on changes such as physical health and cognitive ability that are linked to more noticeable diminished functional ability. We rarely speak about our sensory experiences and the emotions that are associated with them.
In this presentation I will review both the changes that all of us are accustomed to linking with the aging process. However, I will particularly focus on sensory changes that are less noticeable and on the sensory experiences of aging that are associated with them.
We will explore: What does it mean when objects become fuzzy because I cannot see clearly anymore? How do I feel when I cannot understand what I see on TV unless I increase the volume so that my auditory perception will be able to get the sensory input it requires for me to be able to process what I hear? What is my sensory experience when I wake up in the middle of the night covered with sweat because my hot flashes disturb my sleeping? What happens when I try to get up and find myself walking diagonally because my body does not seem to "know" that I am not vertically erect? Or what is my experience when I fall without what seems to be an "apparent" reason? And most importantly, how do I feel when I suddenly become aware and realize that my senses are not as sharp and adaptable as they were "just" a while ago and as a result my ability to process sensory information I receive from the environment is diminished together with my functional ability? These are important questions I explored through personal interviews with individuals who were both with and without disabilities.
In this lecture I will present the stories the interviewees told in their personal interviews and their account of the sensory experiences associated with the aging process they had in the various stages of their lives.
10:30am-10:45am | Nutritional Break
10:45am-12:45pm | Plenary 9
Keynote Presentations
10:45am-11:45am
David Hingsburger
Vita Community Living Services, Toronto, Canada
David Hingsburger is a therapist who specializes in the sexuality of the developmentally disabled, and is a long-time disability rights activist. He has worked in the field of disability since graduating from university over 30 years ago. Hingsburger himself recently became disabled and now uses a wheelchair when out in the world.
WHAT'S LOVE GOT TO DO WITH IT?
Abstract
Oddly the discussion regarding sexuality and people with disabilities seems to never get past 'Plumbing 101'. Topics like sex education, masturbation and boundaries are
important, true, but they tend to reduce sexuality to 'things we do with our genitals'. Sexuality is about much more – much, much more. It is about how we love, how we relate and how we feel in our own skin. This keynote is about 'above the belt' sexuality. About love and loneliness, about relationship and reciprocity. Have you ever wondered why sexuality and disability is so controversial? This keynote will suggest that the controversy isn't about bodies and babies, it's about love and equality. Sexuality is about genitals, of course it is, but there is a real danger in forgetting that it's also about the heart and about the soul. What's love got to do with it? Pretty much everything.
11:45am-12:45am
Elizabeth Harry, Ph.D.
Special Education, University of Miami, U.S.A.
Beth Harry is a Special Educator with a focus on multicultural and family issues. She attributes these interests to her experience as a parent of a child with cerebral palsy, and to her identity as a person of multicultural Caribbean heritage. As a Professor in the Department of Teaching and Learning at the University of Miami's School of Education, Dr. Harry's teaching focuses on the impact of cultural diversity on education, on working with families of children with disabilities, and on qualitative methods in educational research.
GROWING WINGS WITH MELANIE:
A MOTHER'S JOURNEY
Abstract
This evocative presentation will use music and photos to reveal Beth Harry's experience of learning to be a mother to a uniquely vulnerable but gifted child. Reading excerpts from her memoir, Melanie - Bird with a Broken Wing - Beth will share the soaring excitement she and her daughter experienced as they grew wings together with the help of caring professionals, the love of family and friends, and the instinctive drive to create meaning in life.
12:45pm-1:45pm | Lunch (provided)
1:45pm-4:45pm | Plenary 10
1:45pm-2:45pm
Kevin Stoddart, PhD, RSW
Factor-Inwentash Faculty of Social Work, University of Toronto, Canada
Kevin Stoddart, PhD, is Founding Director of The Redpath Centre in Toronto and Assistant Professor (Status) at the Factor-Inwentash Faculty of Social Work, University of Toronto. He has worked in the fields of Autism Spectrum Disorders (ASDs), Asperger Syndrome and child and adult mental health for over twenty-five years. His research and publications focus on understanding the clinical and psychosocial needs of individuals with developmental disabilities, ASDs, and their families.
ASPERGER SYNDROME: CHALLENGES AND OPPORTUNITIES ACROSS THE LIFESPAN
Abstract
Asperger syndrome (AS) is increasingly diagnosed in individuals at all life stages in Canada. This presentation will highlight the opportunities and challenges of
living with AS across the lifespan and these will be illustrated by reference to the current clinical trends seen at The Redpath Centre in Toronto. Considering that many of the challenges that individuals and their families face are related to a lack of services, practice research and clinical expertise in Canada, development of knowledge translation strategies, clinician and consumer-informed research, transformative policies, and cross-sector collaboration will be discussed.
2:45pm-3:45pm
Daniel Drubach, MD
The Mayo Clinic, Neurology, USA
Dr. Daniel Drubach is a Geriatric Psychiatrist, board certified in both Neurology and Psychiatry, and with a completed fellowship in Neurorehabilitation. His areas of expertise include traumatic brain injury, coma after neurological injury, and dementias.
THE PURPOSE AND NEUROBIOLOGY OF THEORY OF MIND FUNCTIONS
Abstract
Theory of Mind (ToM) refers to a cognitive
process which allows an individual to ''place him/herself'' in the other person's ''mind,'' so as to comprehend the latter's cognitive and emotional status and to predict his/her behaviour and emotional response to a particular situation. ToM is necessary for everyday interaction among individuals and accounts for such human traits as empathy, compassion, and deceit. It is also particularly important in the relationship between a healer and his or her client, as well as in the God– human relationship. Recent research in the area of neurosciences has identified a specific brain ''system'' responsible for ToM, and has described how these functions may be affected in certain neuropsychiatric conditions. In this presentation, we discuss the definition and neurobiological substrate of ToM. In addition, we discuss the cognitive steps important to achieve an ''accurate'' theory of mind, its relevance to ''self-knowledge,'' and its limitations. We also review some of the data concerning abnormalities and ''distortion'' of ToM in neuropsychiatric disorders and aberrant human behaviour.
3:45pm-4:45pm
Mike Atkinson, Ph.D.
University of Western Ontario, London, Canada
Dr. Atkinson is currently a Professor of Psychology at The University of Western Ontario. His main focus is effective teaching in a large class format. The goal, is to try to understand what works and why. Other interests include the use of multimedia in the classroom, structure of media materials, effective lecturing, test construction, learning styles, class size, and the effective use of nonverbal behaviour.
THE SENSORY EXPERIENCE OF SCHIZOPHRENIA
Abstract
Typically, we experience the world around us as an integrated whole--our perceptions match our feelings and our behaviour is consistent with our interpretations. But this is not the experience of an individual with schizophrenia. Thoughts, perception and reality may not mesh at all. Images appear that should not be there. Voices from nowhere impinge upon your daily life, often telling you what to do. Your thoughts seem quite coherent to you, but are totally meaningless to other people. What is like to live in this world? What is it like to have your mind split apart?
Dr. Atkinson will discuss the world of an individual suffering from schizophrenia and try to give you the experience of being in a mind that doesn't make sense. Along the way, we may find that the mind is actively creating reality for us all the time. The processes that construct our world are not all that different from those that contribute to schizophrenia.
4:45pm-5:45pm | Dinner
7:30pm-10:30pm | Special Evening
"Autism in the Arts": An International Perspective
The “Autism In The Arts” Evening will feature a screening of the film “This Is My Child” by Israeli documentary filmmakers, Aviv Hurvits and Kastina Productions, followed by a discussion with the filmmaker and featured families from the film. This heartfelt and beautifully telling film depicts five families in Israel dealing with the challenges of autism from diagnosis onwards and chronicles the unique journeys that each family embarks on from childhood into adulthood. With tough decisions and unanswered questions, each family struggles to find the answers and support from the world around them and each other.
*Transportation to be arranged for conference attendees.
**Film is being shown with English subtitles